Happy Easter 2011

Support Neruroblastoma and on the back Cancer Sucks

Konner received a Kimberly's Hope Easter Basket from Battle 4 a Cure & Miranda Allen

Happy Easter 2011 From Konner

Lately..

Konner is Officially walking. I am so proud of him and his accomplishment. He literally just started this weekend. Walking everywhere! This is big for us. Originally they thought he made need therapy. But he has proved them wrong once again. Cancer is not winning this battle. Konner is kicking Cancer's butt. He is a happy baby and is doing so well lately. He loves his brothers and our new dog Nala. He tries to lay in her bed with her all the time. He likes to play with his dad's PS3 controller and takes it away at times. He also like to press the buttons on our computers (this seems to be his favorite). We are so thankful for Konner and what he has brought to our family. He is just a happy baby and it brings faith to my life. He has been through alot but he does not let it affect him. Happy wednesday to you all! 

Konner & his brothers with their new puppy Nala

Konner in his new beanie made by Tammy Phillips

Konner and a doughnut he manage to get from the table

(I had more pictures but for some reason the ones that are edited wont come up right.)

Grateful

Yesterday I heard about the passing of Jenna Miller. Back in October of last year the Miller family introduced themselves to me at Konner's dinner benefit. They were such a nice family and they shared their story with me about their little girl named Jenna. Jenna was diagnosed with stage 4 Neuroblastoma and was putting up a strong fight. They were so positive and things were going good for her. I could feel the faith and strength these people had. They gave me so much confidence that Konner can beat this cancer. In january of this year Jenna took a turn for the worse and they learned that she had relapsed with a brain tumor, which is a common relapse area for Neuroblastoma. Once you relapse with Neuroblastoma there is NO KNOWN CURE!!! Jenna had been having good and bad days and unfortunately she is now an Angel. She did not lose her battle with cancer. Her body did. Jenna was a warrior and never let this cancer take her down. She went out with grace and love and with her parents beside her. She is inspiration to me and my family. If you would like to read about Jenna and her brave battle CLICK HERE. To The Miller Family, My heart and Prayers are with you. I will always remember Jenna. Thank You for coming up to me that day, you have made an impact in my life. Thank you and God Bless You!!

This breaks my heart. I cant believe that there is no known cure after relapse for this childhood cancer. Something needs to be done!  Our Children are losing their lives! They are not getting a chance to grow up and be adults, get married, have kids, experience what we all get to have. They are instead in the hospital getting poisoned with medicine in order to cure their cancer. I am saddened that I have yet again been impacted by another loss. I can not imagine what those families are feeling. Today I am grateful to have my Konner doing good. He has had his time dealing with this cancer devil and today because of the great doctors at Phoenix Children's Hospital he has a chance at having a normal childhood. I just will continue to pray and have faith and hope that he never relapse's once he is NED. I pray for the day that the doctor classifies Konner as NED. That day will be a holiday for the rest of our lives. Because that day is the day Konner will beat his cancer.

Results from scans done on 3/17/2011

So today was our last day at UNM and I am happy to say Thank you but Here we Come PCH and We are so Happy about this move and change in Konner's treatment!!

Konner's scan results came back good. So I think... The doctor said everything looks good may be a little smaller... Um ok I will take your Maybe and head to PCH for better care. All I can say is that Konner seems to be heading in the right direction. He is a happy 1 year old and is getting healthier and is fighting his way to being Cancer free!

He is a Warrior!!!

Thank You to everyone who reads his blog and facebook. And thank You for all your constant support and prayers! You guys are miracle workers! Thank You

13 months

Dont mind the food and messy hair. 

found all the good stuff

Konner in his new car

Konner before haircut, w/ justin beiber style

So grown up with his new haircut.

Sorry these next pictures are sideways. Blogger has been frustrating me lately. There is no way to fix them. For some reason every other time I try to upload pictures this is what happens. So please be patient and sorry for the mess up. 

Konner is 13 months old and is such an active boy. He has recently found all the fun things behind the drawers and cabinets in the kitchen. Fun for him but not so much for me. lol Along with turning 1 Konner also got his first haircut. He looks so much older now and I kinda miss his Justin Beiber hair. He is a fun energetic baby. He loves his brothers so very much. He also loves when his daddy walks into the room. His whole face lights up and he reaches out for him while saying daddy in the sweetest voice. Now he loves me too! He hates when I leave the room and always needs me to cuddle him to sleep. He is our baby and he is growing up way to fast! Here are some pictures from the past month.

Almost scan time again.

As I sit here right now I cant help but thinking about our week ahead. These times are always nerve wrecking and so is the week after. You never know what kind of news your going to get. I cant believe this is Konner's 4th set of scans Post treatment. I wouldn't even be able to tell you how many he had during treatment. It was just that much. Every time he has to be put to sleep and that alone is scary. Its so heartbreaking holding your 1 year old while he is being put to sleep for something. But Konner is a champ! This week is more evasive than the 2 previous scans. He will have the MIBG test. and I am glad they are finally doing one.

I also cant help but think about infant hospital gowns. Well Konner just barely fits into them. they are pretty big. When Konner was actually in the hospital he had to be in only a diaper because they didnt even come close to fitting him. He would also get so cold. So i went to target one day and got him those baby gowns. Well I need to make him some of his own since he will be having scans done for the next 10 years. Of course I will make him them only till he is about 5 or so. But if any of you happen to know a place that makes small hospital gowns let me know.

I also wanted to thank you all for following Konner's story and for your constant prayers. Prayers work miracles and I know that Konner is one. Thank You.

Scans are scheduled.

So Konner has his scans scheduled for March 16 & 17. On March 16 he has to go to Nuclear Medicine and receive a special injection for his MIBG test. This injection is so special that they have to order it and once they open it they must inject it right away and the scan for it has to be done 14 hours after. You can find out more info here MIBG scan . So On the 17 Konner will go in at 7:30 to check in and then will start his MRI scans at 8:30. He will be put to sleep the whole time and at 11:30 they will do the MIBG scan. Konner will be put to sleep for approximately 4-5 hours. The MIBG test will see how many Neuroblastoma cells he has. With this very important test we will be able to see how much of his tumor is active and if there are any calcified spots on it. All prayers will be needed that day! Thank You all for your love and support!