tears of Joy!!

So we are here today at UNM getting Konner's labs done and his monthly Pentamidine treatment. We also had to schedule his scans in december. I today got the BEST news I have heard in awhile.

KONNER IS IN REMISSION!!!!!!!!!!!!!!!!!
The doctor was talking to me about how we are going to take out his port in january sometime. And I had a question on my mind that has been bothering me. "Why did you guys stop doing the MIBG test?" And he said well we dont have it scheduled because Konner's cancer is in remission! Honestly I just wanted to break down and cry. Hearing those words were sweet joy and I have longed to hear them. He said that Konner's urine results showed no activity and were in normal range. And after his last scans things look great. they said his tumor is not active and looks like it is just dead. It has no calcified but they said that will take awhile.

So now what do we do?
We get Konner's next set of scans in December and if everything goes well then he will get his port out in January. He will still have monthly check ups for the next year and a half  and scans every 3 months. then after 2 years of remission he will have scans every 6 months and check ups every 3 months until 5 years and then after 5 years he will have scans and check ups every year!!!!!!!!!!!!!!!!!!!!!!!!!!

Thank you all for all your prayers they are truly working!!!!!!!!