The Results are in.................

Konners 2nd set of scan results are in. They were taken last week on 9/14/2010. I got a call yesterday while grocery shopping. Let me just tell you.. As soon as she said hi Erin this is Dr. Butros my heart started racing... Lucky her next words were... Konner's scans look GREAT!!!!!!!!!!!!! WOOOHOOOO They look GREAT!!!!!! she said that his tumor measures about the same as it did for his previous scans. This is sweet music to my ears. I know his tumor is not going away and I know that it is still there. but it has NOT spread nor has it grown. That puts my fears at ease at least for another 2 months when he gets his next scans. Now Konner still has active cancer because his tumor has NOT calcified.

Let me just tell you how APPRECIATIVE I am right now. I have the BEST FAMILY AND FRIENDS! I have a wonderful support system. I have my baby boy still.... I am so thankful for this gift that heavenly father has given me. I am thankful that Konner has come into my life, He has showed me a the meaning in life. This baby brings smile upon smile to my face daily. I am SO VERY thankful for all of you and for all of the support and uplifting messages for Konner that you send. We are thankful that there are so many people willing to help us in any way possible. I think of when we were first told about Konner and were given his diagnoses.. that day and the feelings I had bring tears to my eyes. When you are told that your baby has CANCER you automatically think of death. I dont care who you are but if you are told that, thats what you think of. Then once you are get all the results from test upon test you tend to switch your way of thinking. I remember holding my baby just memorizing every feature of him. Just being with him and staring into his eyes. I remember staying in the hospital with him and never wanting to leave his side. Everything that Konner has had to go through in his short 7 months in life is something that most adults dont have to experience in there whole life. This baby is a fighter! This baby WILL KICK CANCER IN THE BUTT!!!!

A GREAT BIG THANK YOU!!!

So here is the long awaited post of pictures!! The FOP in Farmington held a benefit dinner for Konner. It was a GREAT success! It went off with no problems that I know of lol. And we got to meet some pretty special kiddos and some Awesome Parents. Thank You to all who attended and also a thank you to All those who came up to me to tell me your story and introduce me to your BRAVE Warriors who are also fighting this monster called Cancer! You guys are so special and I am so glad that I got to meet you! Also a BIG Thank you to Sgt. Cordell, Sgt. Scott, officer Snowbarger of the Farmington P.D & to Sgt. Webb of the SJ Sheriffs Office. Thank You for Organizing this benefit for Konner and our family. Thank a Million Times! Also thank you to all the many volunteers that came out and helped that day and THANK YOU to ALL THE BUSINESSES That Donated the prizes for the raffle! THANK YOU TO ALL!!!

Konner and his Dada at the Motorcycle Run

Officer Snowbarger and Sgt. Webb 

Sgt. Webb & Officer Snowbarger with Konner

Konner's brother at the bike run

Kayben and Konner's Favorite bike

Some of the MANY Prizes

brotherly love

Konner's parents favorite bike

Sgt. Scott & Sgt. Cordell with Konner

All the Cars and trucks lined up down the streets! 

TONS AND TONS

A packed parking lot! 

All the WONDERFUL Supporters!!!

A VERY LONG day of scans....

So today Konner went to the hospital at 6 am. We got there and they got him admitted for his scans. He went in for his scans at 8. Let me tell you how hard it is to hold your baby in your arms while they put him to sleep. ITS HARD! Everything went GREAT and was uneventful with his scans. We will get the results back within 2 wks. After his scans Konner went back up to clinic to meet with his dr and then off we were to the infusion rooms. We got up there and they drew Konner's blood and then took his urine to be tested. things were great until they hooked him up to his Pentamidine line. Thats when a long day got even LONGER!!! The nurse noticed that the area around is port was starting to swell. So the other nurse came in and we were told they were calling the dr. and were going to stop his meds. They said that his port might have a leak in it or the line could have detached somehow. They said thats rare but it happens. and Hey Neuroblastoma is rare right?! Right..... So the dr. came up and said they were sending us to get x-rays with dye. So off we were to the radiologists. Needless to say a scare and 3 hours later the results came back and Konner's Port looked GREAT! They said that it could have been a freak thing that happened. So we went back up to infusion and started his meds again and everything went fine.

What do you know. Something things just happen! All in all it was a LONG day but very well worth every minute of it. I will be updating you as soon as we get the results!

Second set of scans.......9/13/2010-9/14/2010

So we have arrived to our hotel for the night. We took Konner to the clinic earlier to get his port accessed for tomorrow's scans. He has to be at pre-op tomorrow morning at 6:45. He will then undergo general anesthesia for his scans. After his scans he will then go up to clinic and receive his monthly treatment of Pentamidine and have a urine test done as well.

I will make sure to update you all tomorrow when we arrive back at our hotel. Please pray for a good outcome on these tests. Thank you all for following Konner's journey and for all of your prayers and constant support!

Amazing

Just a quick THANK YOU to all those who were able to make it out tonight to support Konner. And to those of you who were there in spirit THANK YOU TOO! We had such amazing support tonight at Konner dinner benefit and Bike Run. Thank You all for your kindness, Love and Support. We thank you from the bottom of our hearts. I will be sure to make an official post on monday with lots of pictures!

again 

THANK YOU!!!!!!!!!!!!!!

KRQE Channel 13

Konner on news channel 13 in NM!

Konner's Benefit Dinner

So This saturday September 11th is Konner's Benefit Dinner and Bike ride. So if you like food Come Join the fun. Or if you like to ride motorcycles go on the FUN bike ride! You check in at 9 am for the bike ride and then kickstands are up by 11. The bike ride includes dinner and 2 raffle tickets! that is $20 for the bike ride. And then if you would just like to go to the dinner it is $5 per plate. There will be raffle tickets sold there and there are some great prizes! Including 27 inch T.V, Patio Heater, Glock 9 mm handgun, blue ray player, and then NUMEROUS door prizes!! you can call Pat Cordell for more information if needed: 320-6735

Also for family and friends Konner will be getting Blessed the following day. We are so happy to finally schedule a time for this to Happen.

September is Childhood Cancer Awareness Month!

Hey Everyone,

So we have entered into the month of September. I had no clue until Konner was diagnosed that there was an awareness month just for Children with Cancer. This is a special month for me not only because my son has cancer and not only cause I have a cousin who is now an Angel in heaven because of this awful disease. No matter what type of cancer it is, no matter if your an adult or a child. Cancer is an awful thing to have. Everyone hears it the same and it sounds just as ugly as it is! I am so blessed to have an awareness month. I would like to RAISE as much awareness as possible! So I have added a picture of my little konner to an already created awareness logo!  If you would like to raise awareness feel free to keep this for yourself as a reminder. Lets raise awareness together!

Below are some Childhood Cancer statistics!

Each year in the U.S. there are approximately 12,400 children between the ages of birth and 19 years of age who are diagnosed with cancer. About one in 300 boys and one in 333 girls will develop cancer before their 20^th birthday. In 1998, about 2500 died of cancer, thus making cancer the most common cause of death by disease for children and adolescents in America.


Today, the overall 5 year survival rate for childhood cancer is close to 80%. Because treatment cure rates have increased, the population of childhood cancer survivors has also increased. Currently there are estimated to be 270,000 survivors of childhood cancer in the U.S. This equates to one in 640 young adults between the ages of 20 to 39 being a survivor of a childhood malignancy.


Today 46 Children will be told them have cancer
1 out of 5 of them will not survive
1 in 330 children will be diagnosed with cancer, they average age of those is 6
Cancer is the NUMBER 1 disease killer of our children. 

Lets Make a Difference, lets bring awareness of our Children! 

Latest Article on Konner

Here is the link to the lastest Article on Konner!
The Daily Times

Update..

Hey everyone Konner just got back from his regular pediatrician. He had to get established there. His Dr. use to be an oncologist and knows LOTS about Konner's type of cancer. She also found some lumps in the back of Konner's neck. So please keep him in your prayers and pray that they turn out to be cysts!

She also said that he made need Physical Therapy, because of the way he plants his feet. He may be unaware that he has feet because of how the tumor was pushing on his lower spine. So we will wait till he is 9 months and if he is still army crawling and his stance is the same they will have him under go physiotherapy.

Although our baby is a strong lil guy he still has a long way to go in recovery. Please Keep him in your prayers! Luv to All