Friday, April 30, 2010

Getting sicker...

Konner has been getting sicker and  He has been really uncomfortable these last 2 days. Please Pray for him!!

Thursday, April 29, 2010

Run for Konner's Fight

(Design provided by Matt Greggersen of Vain Photography)

Hey everyone the run for Konner is underway. It is scheduled as of now for Saturday June 19th. It is a 5k and a 1 mile Fun Run. I have registration forms that will be ready next week for people wanting to participate. If you would like to help out with the run instead of Participate email and let me know. You can help with Registration, refreshments, timing, etc.


I have been missing in action for 2 days. Things around here are a constant go. Konner has not been feeling well these last 2 days. He seems like he is in more pain. I have been giving him his neupogen shot everyday and im pretty sure it hurts me more then him. he doesn't really cry thanks to the numbing creme they gave me. He absolutely HATES taking medicine everyday. To tell you the truth I hate giving it to him. It makes everything more reality. I hate knowing that my baby is really really sick and I just cant make him feel better. I know by me doing the things I need to and by taking him to the Dr and the hospital, I did help him out in a big way. I know that if I would have never taken him in for a diaper rash that wouldn't go away I would have never known my baby has cancer. I just love this little boy so much and I hope and pray everyday that he gets better soon.
So if you ever think something may be wrong with your child, even if its something you consider not important like a diaper rash TAKE THEM IN!!! It could be something SERIOUS and The worst that could happen is they tell you nothing is wrong.

On a happier note Konner had his first clinic appointment on Tuesday. His ANC levels were perfect so that means that his blood and platelet levels have not dropped. He had a false high, so on his next appointment his levels should have dropped. Which makes him more prone to infections. We also got the date for his 2nd round of Chemo. It will be May 11th at 8:30 am.

Please Pray that he will have the least side affects during treatment. Please Pray that he will be comforted. Please pray that he will not get infections or sicknesses. Pray that he has the STRENGTH to overcome this disease. Just pray thats what we ask! 

Monday, April 26, 2010

Sunday, April 25, 2010

WE ARE HOME!!!!!!!!!!!!!!!!!

Hey Everyone,

You read right, Konner got to come home today! He was sure loved on by his brothers and you bet I took the cutest pictures of them. We were too excited to get out of that hospital but also overwhelmed with everything that we have to do on our own. Its crazy how much goes into caring for a cancer patient. Konner has already gotten sick tonight so I am trying my best to keep him comfortable. He has his 1st out patient check up on Tuesday. We are very excited to try and get back into the swing of things. Thank you all for your loving support and generosity. And above all else Thank You so MUCH for your Prayers!

(Pictures to come as soon as I get a chance to relax)

Saturday, April 24, 2010

End of Chemo........Not so good day

So Last night was Konner's last dose of Chemo for round 1. He didnt take it as well as the first two. He was soo uncomfortable the whole night and this morning he was just as sick. I feel soo bad for my baby that he has to be poisoned in order to be healthy. This morning he had the roughest time taking his meds. We actually had to stop his oral care because he was getting so sick and coughing and spitting everything back up. So we had to give him some more anti nausea meds and post pone his oral care. The good news is......... We get to go home tomorrow!!! Tonight I have to give him his Neupogen shot in front of the Dr's so they know that I can do it. And then we get to leave tomorrow morning. Konner already has his first out patient check up to check his blood counts. We get to be home for 2 weeks and then he will come back for his 2nd round of Chemo.

Thank You all for your support! Konner is 1 step closer to being a healthy baby. Please Continue to pray for his fight at night! Thank You truly from the bottom of my heart!

Friday, April 23, 2010

Last round of chemo!!!!!!!!!!!!!

So tonight is Konner's last night of his 1st round of chemotherapy. YIPEEE!!!! He has done good so far. He is such a fighter, he keeps on pushing through everyday with Bright Smiles that r so contagious! My Heavenly Father has truly blessed us with wonderful children! I am so grateful for everyday, hour, minute, second that I have with all my kids. I have a better appreciation and outlook on life and I have Konner to thank for that. I will forever have this lil Angel as my rock! Thank you All again!!!!

Update.... Day 2 of Chemo

Hello All,

So Konner's night was pretty uneventful. Although he did wake a couple of times he did great. The chemo didnt seem to take as long lastnight. It could be that the first day it was sooooo OVERWHELMING! iIt still is a little bit scary but I know that with every treatment and all the care that he is getting, means we are stepping closer to a cure.

So even if/when he is able to get the rest of his tumor removed he will still have ALOT of aftercare. When you hear the word CANCER you automatically think of Chemotherapy and Radiation. You dont think of all the other meds you have to take just to protect your body. Konner has to do mouth care 3 times a day. I mean this stuff is GROSS! I have to swab his mouth with this minty wash called Biotene which you can just buy at a pharmecy. And then the second one we have to swab his mouth with and he has to swallow it in order to coat his throat. This is called Nystatin, its this thick yellow liquid. And then he has to get this other medicine and then once he is done with Chemo I have to give him a shot called Neupogen which I talked about in an earlier post. Besides the meds he will also have LOTS and LOTS of check ups. They are saying all the check ups will last from 9 months to a full year! And then he will have check ups sporadically for 4 more years just to make sure the tumor didnt grow back. Right now they said that he has a 94-95% chance of the cancer never coming back once its cured!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! 

We also got some great news this morning. His results from his MIBG & Hearing tests came back. His hearing is normal and he has no cancer or tumors anywhere else in his body except for the spot they were unable to re-sect!  That is GREAT news for our "lil' Tough Guy"! Thanks for ALL your prayers everyone. We are soooo grateful! and Again I cant thank you enough for your continued support. We are Closer to kicking Cancer in the Butt!

Thursday, April 22, 2010

day 2 of chemo.....

so today is Konner's day 2 of chemo. he is doing good besides the occasional spitting up. he is still as happy as ever.

We do need your help today though. Not for Konner but for his friend Cecilia! Cecilia shares a room with Konner and she is only 5 years old. She was diagnosed with Leukemia. She has found a special place in my heart. My cousin was also diagnosed with Leukemia and unfortunately lost her courages battle. This little girl reminds me of my cousin not because they share the same disease but because they both kept on SMILING. Cecilia has a contagious laughter and sings her heart out. She loves spongebob and hello kitty. She has been battling this disease for 15 wks now and has only been home for 4 days. She is in desperate need of a bone marrow transplant or she could lose her battle with cancer. If you or anyone you know can get tested to see if you can be a match for little Cecilia I ask that you please try. Please keep little Cecilia in your prayers as well tonight. Thank you Love to All

Day 1 of Chemotherapy..........

So we have passed day 1 of Chemo. Konner did ok, he spit up about 5 times and hardly slept any. He was WIDE awake for the 1st 1 1/2 hours. The next hour he was just plain fussy. He didnt fall asleep til around midnight and even then he wasnt in a deep sleep. He was uncomfortable most of the night. He was all smile this morning though. We also got the "BIG BINDER" FULL of info on NB and everything else you could imagine. I also got my lesson on giving him his Neupogen injection. This shot will help get his white blood cell count up faster. I did great the lady said and so now before Konner is able to go home I will have to give him his shot infront of them so they know I can do it. Things are going good and Tonight we start his 2nd dose of Chemo. Please Keep him in your prayers.

I will update again tomorrow.

Wednesday, April 21, 2010

12 days after surgery........

So here is a picture of one of Konner's battle wounds. This is the one on his back and this is where part of the tumor was SUCCESSFULLY removed! Looks painful but he is getting through everything with a BIG SMILE on his face!!! Chemo starts tonight at 8 I will update you in the morning. Good night to all!!


So today Konner is having his hearing and MIBG tests done. He will have to undergo general anesthesia. It will be his 3 time having to be put to sleep. He is a champ though. He will also have his 1st dose of Chemotherapy. This morning Konner got his first bandage taken off. It was the one on his spine. It looks soo painful! I will update again tomorrow on Konner. We will be going over his treatment plan today and getting the "big binder". The binder has his treatment plan all of his records and tests and dr's cards. Everything you can think of to help get us from one day to the next. We are holding strong and will pull through this trail like all the rest! Thank you for your continued prayers and support!!

Tuesday, April 20, 2010

let me clarify

This does not mean Konner is out of danger. He still has a long road ahead of him but that road was cut in half with this diagnoses. He will have many follow up tests to make sure the tumor has not grown back after removal, and to make sure that the cancer did not spread elsewhere. So far he has cancer No where else in his body except for the tumor! So that alone is the best news. As of right now he will only undergo 2 rounds of Chemo and then they will do another scan to see if the tumor has shrunk and then they willl go from there. By the time this trial is over I will have a minor in MD. lol Keep praying for little Konner! Its with your prayers that keeps him strong. Pray that he will overcome this with as little side effects as possible. Pray that he will beat this cancer and live a happy life. Thank You ALL from the bottom of my heart. Thank you for your support and for your kindness. Thank you for taking time out of your life to read about my baby and thank you for your help with everything. My family and I can not thank you enough!!!

SHOUT IT OUT!!!!!!!!!!!!!!!!!!!!!!

I just want to scream right now!!!!!!!!!We just got konner's prognoses!!!! His bone marrow came back normal and he is NON AMPLIFIED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I am so happy and this is the BEST news we have gotten!!!! He is in the low/intermediate risk for this type of cancer!! So he has a really good out come! He starts chemo tomorrow and then gues what!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! He gets to come home saturday for a couple of days until he starts his 2nd round of chemo!!!!!!!!!!!!!!!!!!!!!!! They are going to show me how to give him his injections and then he has chemo wed, thurs, friday and hopefully comes home sat for a couple of days. and then he will start his second round of chemo! I will keep you all up to date. Thank you for your prayers keep them up they are working!!!!!!!!!!!!!!!

Monday, April 19, 2010

Pennies for Konner

update 4/19/2010

Today has been pretty uneventful. Konner is full of smiles and has been doing great today. Kyle is here with me and has been making me laugh all day. I love times like this! No news on anything yet but he is scheduled for his next 2 tests on Wednesday. After that we should hopefully have our plan of treatment by friday.

photoshop fun............

So I have been having some fun with photoshop while sitting in the hospital with Konner. Here are some of my fav's!

Sunday, April 18, 2010

Holding Konner....

Kyle got to hold Konner for the 1st time since his surgery. Take a look. 

A big Smile!!!!

Hey everyone,
Sorry I didnt post last night. I actually got to have a night away from the hospital, my first in 9 days. I was able to spend sometime with my other 2 boys whom I missed dearly. It was nice to see some bright smiles. But it was also hard to leave Konner as he was smiling most of the day. Check him out!!!

Konner has been doing great. He has been smiling soo much. He is still having a little bit of pain but who would be you know. We had some special guest yesterday as well. Our best friends Jarod and Jessica. Jessica made Konner a blanket and this ADORABLE quilt. It says "lil' Tough Guy". She is an amazing girl and makes the cutest little blankets. She did mention that she wanted to make some blankets to sell so as soon as we get that going I will post about it. 
Last Night I also got to talk to a parent of a little boy who is fighting his own battle with NB. It helped me soo much and it gave me more of an insight to the battle. If you would like to check out his story go here Wyatt Kamp . Thank you for all your prayers and support. Once again keep the faith and hope and most of all Keep smiling and stay positive. This little guy will. 

Saturday, April 17, 2010

April 17, 2010

So This morning Konner was pretty fussy. He was in a little pain and was getting sick of everyone turning him over and picking at him. He seems to be healing up just fine and is still a super cute little smiley boy. He won the cuteness award for the day or so the Dr. Said lol. We did receive his bone scan results from yesterday. They came back as expected. Konner does have some bone damage where his tumor was taken out of his spine. There is no other bone damage anywhere else but that site. So that is good news. They say that with Chemo and possibly tumor removal his bone should grow back and heal great. They are going to let him rest this weekend!!! So no tests as of now, but things change sometimes. He is surely a little trooper!

Friday, April 16, 2010

How could I forget.......

How could I forget one of the most important things of the day......... Konner got to EAT for the first time since saturday at midnight!!!!!!!!!!!! He started about 8:00 tonight. And he has eaten an ounce and half. He is doing GREAT!!!!!!!!!!!

Long day

So today was pretty long. My day actually started off at 1,2,3 and finally 6 o'clock this morning. I had a baby that just wanted to be wide awake. He had a great day today and ended his night with a big smile on his face at 9 pm. Konner had his bone scan today and we should get the results back in 3 days but I dont think that includes weekends lol. He did absolutely great and guess what my baby has no tubes in or around his face. We were also moved up to the floor. So we are out of PICU and on the 2nd floor. We share a room with this little girl who has lukemia. She is so cheery but really wants to go home. Unfortunately she still has awhile here. She has the cutest laugh and when Konners mobile sings lullabys she sings along.

As I sit here thinking while my precious baby sleeps, I sit and wonder..... Is this why all these little kids are soo sick? Cause they can be in the worst pain and have such a bad horrible disease and still have a a bright smile on their face. I know if it was me I would just want to sleep and I would have a frown and ask why me. But these little kids just want to get better and move on with their lives and GO HOME. I cant wait for Konner to get his treatment plan so we can start kicking this cancer in the butt. I know he is ready to go home to his brothers and I know I am ready to have my sweet baby boy be HEALTHY again. Until tomorrow, I will leave you with this..................

When things go wrong as they sometimes will;
When the road you're trudging seems all uphill;
When the funds are low, and the debts are high
And you want to smile, but have to sigh;
When care is pressing you down a bit-
Rest if you must, but do not quit.

Success is failure turned inside out;
The silver tint of the clouds of doubt;
And you can never tell how close you are
It may be near when it seems so far;
So stick to the fight when you're hardest hit-
It's when things go wrong that you must not quit.

~Author Unknown

Concert Tonight at Goathead Saloon.

Hey guys the band Juicy Newt is playing down at the Goathead Saloon in Mesa. All the money they make they are going to donate it to Konner. If you have time or are a music lover head on down for a good time. When you get there just tell them you are there to see Juicy Newt.

the address is
1423 S Country Club Dr
Mesa, AZ 85210-5185

thats on country club and the 60 next to trails.

recent pictures of Konner With Kyle & I

Long Night...............

Today Konner is Scheduled for a bone scan and then they said hopefully after that they will move him to the floor!!! I will be sad to leave the PICU because they have been so good to lil' Konner here and once we move we have to share a room with another patient:( That will be ok hopefully they dont speak spanish so I can understand them lol. Konner is doing good so good infact that he didnt want to sleep lastnight. This poor lil baby has gone through sooo much in these last couple of days and I am so very proud of him and how strong he is! He has bandages everywhere. He has one on his back, belly, 1 on each hip, 1 on each side of his neck and his port on his chest. For those of you that dont know what a port is I will post a picture of it. It goes under konners skin and it is used for his chemo treatments and to draw blood. A little black connecter thing with a needle on it just pops on the top of it and then when he isnt on chemo it pops right off so you cant see anything except a bump under his skin. He has several little needle marks from all the IV's too. He is a CHAMP and he is all mine, well and Kyles! Thank you guys again for your prayers. They are helping so much keep it up!!