Monday, January 31, 2011

So Lost

So here I am again today with another rant with the medical care my son is getting. Today I had to call his Dr's to find  out the results of his tests from the 21st. They said that everything was good. His VMA was 15 and his HVA was 25.But they said his ANC level was 800. Which is low but not low enough to get a transfusion. If he reaches 500 he is at risk for infections and getting really sick. I am so upset right now that I cant stop crying. It feels like they don't care. So ok his ANC is 800 you know that now so whats making him sick. They were suppose to run other tests to see if he has a virus or flu. And they didn't run that because his dr. forgot to order them. Seriously how do you forget this. and they waited over a week to tell us that Konner had a low ANC level. Shouldn't they have told us ASAP so we could watch him and make sure that he doesn't get a fever. We have other kids and one who is in school and plays basketball. I take Konner with me to pick him up and take him with me to take him to basketball practice and to games. It would have been nice to know that I should have been keeping him inside. I am sorry for this rant but I just want better care for Konner. My husband and I have been thinking alot about Konner's care. Therefore we put in for some jobs in Oregon and if that doesn't work out then I will be transferring Konner's medical care back to Phoenix Children's Hospital. I know we are making the right decision we have really though about this alot and know that this is the right thing to do for our family.


  1. He deserves the best care possible, and as his parents, you deserve care that is responsive and infomative !!! Go get 'em tiger.

  2. So sorry! The things that throw us into a tailspin are every day occurences for them and sometimes they seem to get complacent! You do become just a number which is hard to take as a parent. I hope you get some answers soon. The not knowing is the worst!

  3. I am so sorry you are having to go through this. You are emotional enough with having a sick child and then to not have supportive doctors is not fun. (((Hugs to you))).